Chronic Conditions 26th February 2020

Rare is many, rare is strong, rare is proud

Lara Chappell was in complete shock when her one-year-old son Pierre was diagnosed with a rare genetic disorder called Angelman Syndrome. She’d been expressing concerns to multiple health professionals about her baby’s delayed development from the time he ...

by Comms Team

Chronic Conditions 3rd December 2019

“Disability is my superpower!”

Ami Ireland thought her hearing difficulties were just the remnants of a cold. At the time, she didn’t know this was the first in a series of symptoms that would leave her with permanent disabilities and change her life ...

by Karen Finn

Chronic Conditions 11th October 2019

How I tackled obesity once and for all

On World Obesity Day, Stefanie Wirtz opens up about her personal struggle with obesity and the turning point that led her to undergo bariatric surgery. “I’ve lived with obesity since childhood, and like most of those affected, I’ve ...

by Comms Team

Chronic Conditions 18th September 2019

Growing Up with Sickle Cell Disease

As we stride into September marking a new Sickle Cell Awareness Month, Jemela Williams discusses the disease she’s lived with her whole life and shares her hopes for a future world that better understands it. When Jemela was just ...

by Comms Team

Chronic Conditions 9th July 2019

The comfort of recovering at home

After being hooked up to an antibiotics drip in hospital for three weeks, David John Watson had had enough. However, the life-threatening blood poisoning that he’d developed meant another few weeks of intravenous (IV) antibiotic treatment was necessary. It ...

by Comms Team

Chronic Conditions 10th May 2019

Life with Lupus…on your own terms

Kim Opszala thought her eczema had returned when a rash appeared on her face, but it was a disease called lupus. She’d been travelling around Australia before starting university in 2005/06 and upon her return Kim noticed the butterfly-shaped rash ...

by Karen Finn

Chronic Conditions 28th February 2019

Living with a rare disease

Gunnar Esiason just celebrated a major milestone: his good health. When you have cystic fibrosis (CF) – a rare genetic disease that creates a build-up of thick sticky mucus in the lungs, digestive system and other organs that can lead to ...

by Karen Finn

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